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Redefining cutaneous lupus erythematosus: a proposed international consensus approach and results of a preliminary questionnaire
  1. J F Merola1,
  2. F Nyberg2,
  3. F Furukawa3,
  4. M J Goodfield4,
  5. M Hasegawa5,
  6. B Marinovic6,
  7. J Szepietowski7,
  8. J Dutz8 and
  9. V P Werth9,10
  1. 1Division of Rheumatology, Departments of Dermatology and Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, Massachusetts, USA
  2. 2Institution for Clinical Sciences, Karolinska Institutet at Danderyd Hospital, Stockholm, Sweden
  3. 3Department of Dermatology, Wakayama Medical University, Wakayama, Japan
  4. 4Department of Dermatology, Leeds General Infirmary, Leeds, UK
  5. 5Department of Dermatology, Faculty of Medical Sciences, School of Medicine, University of Fukui, Fukui, Japan
  6. 6University Department of Dermatology and Venereology, Zagreb University Hospital Center and School of Medicine, Zagreb, Croatia
  7. 7Department of Dermatology, Venereology and Allergology, University of Medicine, Wrocław, Poland
  8. 8Department of Dermatology and Skin Science, University of British Columbia, Vancouver, British Columbia, Canada
  9. 9Philadelphia Department of Veterans Affairs Medical Center, University of Pennsylvania, Philadelphia, Pennsylvania, USA
  10. 10Department of Dermatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA
  1. Correspondence to Dr J F Merola; jfmerola{at}partners.org

Abstract

There is currently no uniform definition of cutaneous lupus erythematosus (CLE) upon which to base a study population for observational and interventional trials. A preliminary questionnaire was derived from and sent to a panel of CLE experts which demonstrated consensus agreement that (1) there is a need for new definitions for CLE (2) CLE is distinct from systemic lupus erythematosus and that a CLE grouping scheme should remain apart from current systemic lupus erythematosus schema (3) current CLE grouping schemes are inadequate around communication, prognostic information and to meet the needs of researchers, clinicians, patients and payers.

  • Health services research
  • Qualitative research
  • Systemic Lupus Erythematosus

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

https://doi.org/10.1136/lupus-2015-000085

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