Median and per cent of respondents by agreement
| Median (IQR) | % Completely agree (100%) | % Agree (70–99) | % Neither agree nor disagree (31–69) | % Disagree (1–30) | % Completely disagree (0) | |
|---|---|---|---|---|---|---|
| n (%) | ||||||
| 1. Defining CLE as distinct from SLE is important. | 98.0 (15.5) | 28 (46.7) | 23 (38.3) | 5 (8.3) | 4 (6.7) | 0 (0.0) |
| 2. CLE is SLE involving the skin in all cases of CLE. | 15.0 (67.0) | 5 (8.6) | 9 (15.5) | 5 (8.6) | 26 (44.8) | 13 (22.4) |
| 3. Patients without serious end organ involvement, but who meet SLE criteria, should be part of a CLE grouping scheme. | 89.0 (24.5) | 11 (19.6) | 35 (62.5) | 5 (8.9) | 3 (5.4) | 2 (3.6) |
| 4. Classification schemes of CLE are important for communication with patients and between physicians. | 99.0 (11.5) | 27 (45.0) | 28 (46.7) | 4 (6.7) | 1 (1.7) | 0 (0.0) |
| 5. Grouping schemes of CLE are important to convey prognosis to patients. | 95.0 (25.0) | 22 (36.7) | 29 (48.3) | 6 (10.0) | 3 (5.0) | 0 (0.0) |
| 6. A single international classification scheme is needed to enable communication with patients and physicians. | 98.0 (20.0) | 27 (45.8) | 27 (45.8) | 5 (8.5) | 0 (0.0) | 0 (0.0) |
| 7. The current cutaneous lupus grouping systems are adequate to meet the needs of researchers, clinicians, patients and payers. | 30.0 (49.0) | 3 (5.4) | 10 (17.9) | 14 (25.0) | 22 (39.3) | 7 (12.5) |
| 8. Regarding communication: there exists confusion when discussing these disorders with patients. | 83.0 (26.0) | 12 (20.3) | 35 (59.3) | 6 (10.2) | 6 (10.2) | 0 (0.0) |
| 9. Regarding communication: there exists confusion when discussing these disorders with physicians. | 86.5 (22.0) | 16 (26.7) | 39 (65.0) | 3 (5.0) | 2 (3.3) | 0 (0.0) |
| 10. Current grouping schemes are adequate to inform about risks during pregnancy. | 53.0 (49.0) | 0 (0.0) | 21 (36.8) | 16 (28.1) | 18 (31.6) | 2 (3.5) |
| 11. The current grouping schemes (at present) are adequate for informing treatment decisions. | 45.0 (46.0) | 2 (3.6) | 12 (21.8) | 20 (36.4) | 19 (34.5) | 2 (3.6) |
| 12. Cutaneous lupus is ill-defined and needs to be formally defined by expert consensus. | 85.0 (34.0) | 19 (32.2) | 25 (42.4) | 11 (18.6) | 3 (5.1) | 1 (1.7) |
CLE, cutaneous lupus erythematosus; SLE, systemic lupus erythematosus.