Paediatric rheumatology care (n = 47) N (%) or Mean (SD) | Adult rheumatology care (n = 38) N (%) or Mean (SD) | P | |
---|---|---|---|
Demographics | |||
Age (years) | 19 (1) | 24 (3) | <0.001 |
Female | 41 (87) | 36 (95) | NS |
Non-white ethnicity | 35 (74) | 29 (11) | <0.001 |
Age at diagnosis (years) | 13 (3) | 13 (2) | NS |
Disease Characteristics | |||
Renal biopsy ever | 25 (54) | 18 (47) | NS |
Cyclophosphamide use ever | 7 (15) | 19 (50) | <0.001 |
Disease activity (SLAQ)* | 11 (11) | 9 (10) | NS |
Self-reported flare in the past 3 months | 14 (31) | 10 (26) | NS |
Health Care Utilisation | |||
Current medications | |||
Plaquenil | 41 (89) | 24 (63) | 0.005 |
Steroid | 36 (76) | 7 (18) | <0.001 |
DMARD | 33 (70) | 12 (32) | <0.001 |
Biologic | 0 (0) | 0 (0) | NS |
Insurance coverage | 45 (96) | 34 (89) | NS |
Difficulty obtaining insurance | 5 (11) | 13 (34) | 0.008 |
Rheumatology visit in the past year | 44 (94) | 26 (68) | 0.002 |
General MD visit in the past year | 23 (51) | 15 (41) | NS |
ED visit in the past year | 18 (38) | 9 (24) | NS |
Hospitalization in the past year | 14 (30) | 9 (24) | NS |
*SLAQ = Systemic Lupus Activity Questionnaire (0–47)