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P131 Development and usability test of a webapp ‘viver com lupus’ to promote adjustment to systemic lupus erythematosus
  1. Sofia Silva-Ribeiro1,
  2. Cristina A Godinho2,
  3. Marta M Marques3,
  4. Deborah Antcliff4 and
  5. Sónia F Bernardes1
  1. 1Iscte-University Institute of Lisbon, Center for Research and Social Intervention (CIS-Iscte), Lisbon, Portugal
  2. 2Public Health Research Center and Comprehensive Health Research Center (CHRC), NOVA National School of Public Health, Lisbon, Portugal
  3. 3Comprehensive Health Research Center (CHRC), NOVA Medical School, Lisbon, Portugal
  4. 4Northern Care Alliance NHS Foundation Trust, Bury Integrated Pain Service, Bury, England, UK; Keele University, School of Medicine, Keele, Staffordshire, UK; University of Leeds, School of Healthcare, Leeds, UK

Abstract

Objective Systemic Lupus Erythematosus (SLE), an autoimmune disease, predominantly affects women, significantly affecting their quality of life. Existing apps aimed at supporting adults with SLE, often with poor quality, only offer educational content without being based on behavior change techniques (BCT). Consequently, there is a need for the development of evidence-based digital interventions (DI) rooted in theory, incorporating BCT to support adjustment to Lupus, especially for women.

Methods The Intervention Mapping Protocol and Person-based Approach were followed and behavior determinants were based on Health Action Process Approach and Common-Sense Model. DI development initiate with a needs assessment, incorporating a systematic review and meta-analysis, interviews with SLE patients and healthcare professionals. Then two primary objectives for the webapp were identified: (1) reducing threatening SLE perceptions and (2) regulating physical activity levels. Five interviews in person were conducted to test the usability of the webapp divided in two parts: (1) think aloud interview: participants were invited to freely use the webapp and verbalize thoughts and feelings; (2) and semi-structured interview: to explore motivation to use the intervention and suggestions or thoughts about aesthetics, content and user experience.

Results The resulting DI is a webapp consisting of two modules, aligning with the identified objectives and changes recommended by participants from the usability test. This webapp will deliver content in various formats, including informative videos and texts, along with interactive activities. Participants will be guided through defining their objectives, formulating personalized action plans, and monitoring their progress. Additionally, the app will help users recognize their primary symptoms, understand the impact on their quality of life, and provide guidance on how to pace physical activity effectively, even in the presence of chronic pain and fatigue.

Conclusion In conclusion, this innovative webapp is poised to offer valuable insights into the effectiveness of self-management strategies, aiding women in their adjustment to SLE. By incorporating evidence-based approaches and BCT, this DI has the potential to make a significant impact on the lives of SLE patients.

http://creativecommons.org/licenses/by-nc/4.0/

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ .

https://doi.org/10.1136/lupus-2024-el.185

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