Background and aims Syamsi Dhuha (Morning Light) Foundation (SDF) has identified two major challenges among the lupus patients who are members of SDF:
Those who have joint pain and muscle stiffness find it difficult to do their daily activities.
Those who have to consult two or more doctors/physicians are having difficulties to combine and maintain their medical records in one place
The above challenges brought us to the current works as solutions to the problems
To create ”Lupus Exercise” (LE)
To create “Lupie Diary Mobile Application” (LD App),
Methods SDF worked together with the Faculty of Sports Education and Health, Education University of Indonesia in developing LE. This LE is recorded and uploaded into YouTube, making it possible for lupus patients to follow the exercise.
SDF worked together with the School of Pharmacy at University of Surabaya, in developing the content for personal medication records. The App is available in Indonesia, English and Mandarin languages, and can be installed on android smartphones.
Results LE is a set of exercise suitable for people living with Lupus, as it:
can ease joint pain and stiffness if done regularly
can promote better general health conditions
LD App is a personal medication record application for smartphone users, intended to help lupus patients:
record their personal medication history
remind them to take medication and scheduled therapy
save images of lab test results
Conclusions Both LE and LD App is expected to help people with lupus in coping with Lupus and in helping improve their quality of life.
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