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LL-05 Fabulupus: a social media evaluation
  1. Jodie Nimigon-Young1 and
  2. Jessica Kundapur2
  1. 1Ottawa Hospital, Ottawa, Ontario, Canada
  2. 2Kundapur Clinical Consulting, Nijmegen, The Netherlands


Background Fabulupus is the only book for young adults, written by young adults with lupus. It was published in December 2012 and addresses all areas of lifestyle for an individual with this chronic illness.

Methods Qualitative analysis of Facebook and Instagram accounts associated with Fabulupus. Entries were assessed based on number of comments and/or acknowledgements.

Results The most popular items include sleep and work balance.

Conclusions Young adult lupus patients are most interested in seeking additional resources and information concerning daily life struggles of living with a chronic condition. Social media posts concerning medical information tend to not draw as much attention. We urge researchers to consider these topics as crucial for further investigation, as well as clinicians to have open conversations with their patients on their general coping. For future, it would be of interest to compare with other like-minded social media for young adults with lupus.

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