TY - JOUR T1 - Health information use by patients with systemic lupus erythematosus (SLE) pre and during the COVID-19 pandemic JF - Lupus Science & Medicine JO - Lupus Sci Med DO - 10.1136/lupus-2022-000755 VL - 9 IS - 1 SP - e000755 AU - Francesca S Cardwell AU - Susan J Elliott AU - Ricky Chin AU - Yvan St Pierre AU - May Y Choi AU - Murray B Urowitz AU - Guillermo Ruiz-Irastorza AU - Sasha Bernatsky AU - Daniel J Wallace AU - Michelle A Petri AU - Susan Manzi AU - Sang-Cheol Bae AU - Jung-Min Shin AU - Anselm Mak AU - Jiacai Cho AU - Christine A Peschken AU - Rosalind Ramsey-Goldman AU - Paul R Fortin AU - John G Hanly AU - Bernardo A Pons-Estel AU - Romina Nieto AU - Anca D Askanase AU - Juanita Romero-Diaz AU - Marta Mosca AU - Ian N Bruce AU - Leigha Rowbottom AU - Leanne Mielczarek AU - Karin Tse AU - Ashley Marion AU - Juan Carlos Cáhiz-González AU - Teresa G Cattoni AU - Alain Cornet AU - Ann Elaine Clarke Y1 - 2022/10/01 UR - http://lupus.bmj.com/content/9/1/e000755.abstract N2 - Objective We conducted an international survey of patients with SLE to assess their access, preference and trust in various health information sources pre-COVID-19 and during the COVID-19 pandemic.Methods Patients with SLE were recruited from 18 observational cohorts, and patients self-reporting SLE were recruited through five advocacy organisations. Respondents completed an online survey from June 2020 to December 2021 regarding the sources of health information they accessed in the 12 months preceding (pre-11 March 2020) and during (post-11 March 2020) the pandemic. Multivariable logistic regressions assessed factors associated with accessing news and social media post-11 March 2020, and self-reporting negative impacts from health information accessed through these sources.Results Surveys were completed by 2111 respondents; 92.8% were female, 76.6% had postsecondary education, mean (SD) age was 48.8 (14.0) years. Lupus specialists and family physicians were the most preferred sources pre-11 March 2020 and post-11 March 2020, yet were accessed less frequently (specialists: 78.5% pre vs 70.2% post, difference −8.3%, 95% CI −10.2% to −6.5%; family physicians: 57.1% pre vs 50.0% post, difference −7.1%, 95% CI −9.2% to −5.0%), while news (53.2% pre vs 62.1% post, difference 8.9%, 95% CI 6.7% to 11.0%) and social media (38.2% pre vs 40.6% post, difference 2.4%, 95% CI 0.7% to 4.2%) were accessed more frequently post-11 March 2020 vs pre-11 March 2020. 17.2% of respondents reported negative impacts from information accessed through news/social media. Those outside Canada, older respondents or with postsecondary education were more likely to access news media. Those in Asia, Latin America or younger respondents were more likely to access social media. Those in Asia, older respondents, males or with postsecondary education in Canada, Asia or the USA were less likely to be negatively impacted.Conclusions Physicians, the most preferred and trusted sources, were accessed less frequently, while news and social media, less trusted sources, were accessed more frequently post-11 March 2020 vs pre-11 March 2020. Increasing accessibility to physicians, in person and virtually, may help reduce the consequences of accessing misinformation/disinformation.Data are available on reasonable request. ER -