Table 2

Health-related quality of life measures in the study cohort at visit 1*

Health-related quality of life measures	Patient self-report	Caretaker proxy-report	P values
	Patient self-report	Caretaker proxy-report		(N=43)	(N=45)
	pSkindex27 summary score	19.6±23.4 (0–84.3)		21.0±22.7 (0–72.2)	0.721
Emotions	22.0±26.7 (0–95.0)	22.7±24.8 (0–75.0)	0.851
Symptoms	21.3±21.8 (0–71.4)	21.7±20.1 (0–64.3)	0.919
Functioning	17.2±23.9 (0–90.0)	18.8±23.6 (0–75.0)	0.633
PedsQL-GC total score	71.0±18.6 (36.9–100)	67.5±20.3 (22.8–97.8)	0.074
PsSS	71.4±19.6 (33.3–100)	67.2±20.3 (23.3–100)	0.015
PhSS	70.9±22.8 (28.0–100)	68.7±24.6 (22.0–100)	0.538
PedsQL-RM total score	73.1±14.1 (45.5–100)
Pain and hurt	75.9±27.2 (6.0–100)
Daily activities	89.0±16.6 (45.0–100)
Treatment	67.6±17.7 (32.0–100)
Worry	60.7±25.8 (0–100)
Communication	67.8±26.7 (8.0–100)

*Values are mean±SDs (range).
PedsQL-GC, Pediatric Quality of Life Inventory Generic Core Module; PedsQL-RM, Pediatric Quality of Life Inventory Rheumatology Module; PhSS, Physical Health Summary Score; PsSS, Psychosocial Health Summary Score.