Concepts discussed within the CE segment of the interview
| Concepts relating to SLE, n (%)* | Patients (n=15) |
|---|---|
| Impact of fatigue on reported functions | |
| Emotional Functioning | 10 (66.7) |
| Physical Functioning | 5 (33.3) |
| Social Functioning | 6 (40.0) |
| Activities of Daily Living | 4 (26.7) |
| Role Functioning | 4 (26.7) |
| Most commonly reported symptoms | |
| Cognitive functioning | 15 (100.0) |
| Fatigue | 15 (100.0) |
| Pain | 15 (100.0) |
| Sleep disturbance | 15 (100.0) |
| Weakness | 12 (80.0) |
| Nervous, brain | 9 (60.0) |
| Skin | 9 (60.0) |
| Arthritis | 6 (40.0) |
| Hair loss | 5 (33.3) |
| Kidney | 5 (33.3) |
| Light-headedness | 5 (33.3) |
| Swelling | 5 (33.3) |
| Ulcers | 5 (33.3) |
| Vascular | 5 (33.3) |
| Number of patients with symptoms reported to vary in intensity over time | 9 (60.0) |
| Triggers reported to intensify symptoms (any) | 14 (93.3) |
| Exposure to sun/photosensitivity Physical exertion | 12 (80.0) 10 (66.7) |
| Stress | 5 (33.3) |
| Cold weather | 3 (20.0) |
| Diet | 2 (13.3) |
| Stopping medication | 2 (13.3) |
| Symptoms reported as the most bothersome | |
| Fatigue | 11 (73.3) |
| Pain | 3 (20.0) |
| Difficulty concentrating | 1 (6.7) |
| Hair loss | 1 (6.7) |
| Insomnia | 1 (6.7) |
| Lupus nephritis/inflammation of the kidney | 1 (6.7) |
| Raynaud’s phenomenon | 1 (6.7) |
CE, concept elicitation; SLE, systemic lupus erythematosus. *Percentages in each category may not total 100% because participants may have reported more than one symptom, trigger, or impact.