Table 2

Major themes and subthemes

Behavioural beliefs: advantagesNormative beliefs: approving individuals
 Altruism (n=15) Self (n=11)
  Improve SLE knowledge Family and friends (n=6)
  New drug discovery Religious groups (n=4)
  Heterogeneity of drug effectsNormative beliefs: disapproving individuals
 Personal benefit (n=12) Family (n=9)
  Access to medications
  Thorough careControl beliefs: facilitators
  Free care Flexibility in scheduling (n=12)
Behavioural beliefs: disadvantages Advanced notice (n=11)
 Unknown aspects (n=22) Ease of consent and patient forms (n=9)
  Receipt of placebo Hope for SLE improvement (n=4)
  Side effects (short and long term)Control beliefs: barriers
  Efficacy Logistics (n=9)
  Risk of flare Time (n=7)
 Disappointment (n=18)
  Exclusion (comorbidities, disease activity)
  Withdrawal of care
  Inadequate feedback
 Information burden (n=15)
  Lengthy forms
  Redundant forms
  Medical and legal jargon
 Life–health balance (n=8)
  Time commitment
  Care of children or other family members
  Frequency and length of appointments