Major themes and subthemes
| Behavioural beliefs: advantages | Normative beliefs: approving individuals |
| Altruism (n=15) | Self (n=11) |
| Improve SLE knowledge | Family and friends (n=6) |
| New drug discovery | Religious groups (n=4) |
| Heterogeneity of drug effects | Normative beliefs: disapproving individuals |
| Personal benefit (n=12) | Family (n=9) |
| Access to medications | |
| Thorough care | Control beliefs: facilitators |
| Free care | Flexibility in scheduling (n=12) |
| Behavioural beliefs: disadvantages | Advanced notice (n=11) |
| Unknown aspects (n=22) | Ease of consent and patient forms (n=9) |
| Receipt of placebo | Hope for SLE improvement (n=4) |
| Side effects (short and long term) | Control beliefs: barriers |
| Efficacy | Logistics (n=9) |
| Risk of flare | Time (n=7) |
| Disappointment (n=18) | |
| Exclusion (comorbidities, disease activity) | |
| Withdrawal of care | |
| Inadequate feedback | |
| Information burden (n=15) | |
| Lengthy forms | |
| Redundant forms | |
| Medical and legal jargon | |
| Life–health balance (n=8) | |
| Time commitment | |
| Care of children or other family members | |
| Frequency and length of appointments |