Participant characteristics (n=23)
| Female, n (%) | 20 (87.0) |
| Race/ethnicity, n (%) | |
| European American/white | 8 (34.8) |
| African–American/black | 7 (30.4) |
| Hispanic/Latino | 5 (21.7) |
| Native American | 3 (13.0) |
| Age, median (IQR) | 48.0 (41.5–57.5) |
| Duration of SLE in years, median (IQR) | 11.1 (7.9–16.8) |
| Healthcare payer, n (%) | |
| Government (eg, Medicare) | 11 (47.8) |
| Private insurance | 10 (43.5) |
| Self-pay | 2 (8.7) |
| Employment status, n (%) | |
| Full time | 8 (34.8) |
| Disabled | 6 (26.1) |
| Unemployed | 6 (26.1) |
| Retired | 3 (13.0) |
| Marital status, n (%) | |
| Married | 10 (43.5) |
| Single | 7 (30.4) |
| Separated | 3 (13.0) |
| Divorced | 2 (8.7) |
| Widowed | 1 (4.3) |
| Education (highest), n (%) | |
| High school | 5 (21.7) |
| Some college | 16 (69.6) |
| College, graduate/professional | 2 (8.7) |
| Annual income (per thousand), median (IQR) | $17.6 ($11.3–$42.5) |
| Distance from clinic in kilometers, median (IQR) | 17.2 (11.3–28.3) |
| Geographical residence, n (%) | |
| Urban | 11 (47.8) |
| Suburban | 8 (34.8) |
| Rural | 4 (17.4) |
| Clinical trial participation, n (%) | |
| Experienced | 15 (65.2) |
| Naïve | 8 (34.8) |