Summary of self-reported measures
| Category | Construct | Measure |
| Demographics | Age | Ad hoc |
| Disease duration | Ad hoc | |
| Education | Ad hoc | |
| Work status | Ad hoc | |
| Health-related quality of life | PROMIS global health-physical | PROMIS SF10 |
| PROMIS global health-mental | PROMIS SF10 | |
| PROMIS depression | PROMIS SF8a | |
| PROMIS physical function | PROMIS SF10b | |
| PROMIS pain interference | PROMIS SF8a | |
| PROMIS fatigue | PROMIS SF8a | |
| PROMIS sleep disturbance | PROMIS SF8a | |
| PROMIS anxiety | PROMIS SF8a | |
| PROMIS anger | PROMIS SF5a | |
| PROMIS ability to participate in social roles and activities | PROMIS SF8a | |
| Self-management beliefs and behaviours | PROMIS self-efficacy to manage medicines | PROMIS SF8a |
| PROMIS self-efficacy to manage symptoms | PROMIS SF4a | |
| Communication with physicians | 3-item Stanford Scale | |
| Patient Activation Measure | PAM | |
| Psychosocial factors | Perceived stress | Cohen Scale 4 |
| PROMIS emotional support | PROMIS SF4a | |
| PROMIS informational support | PROMIS SF4a | |
| PROMIS instrumental support | PROMIS SF4a | |
| PROMIS social isolation | PROMIS SF6a | |
| Everyday discrimination | Williams Everyday Discrimination Scale | |
| Disease severity | Disease activity | SLAQ |
| Organ damage | SA-BILD |
PAM, Patient Activation Measure, used under Insignia Health licence; PROMIS SF, Patient-Reported Outcome Measurement Information System Short Form; SA-BILD, Self-Administered Brief Index of Lupus Damage; SLAQ, Systemic Lupus Activity Questionnaire.