Descriptive analyses of the illustrative variables
| Variables | Variable level | Frequency (%) |
| Sociodemographic variables | ||
| Gender | Male | 119 (3.69) |
| Female | 3103 (96.31) | |
| Age | 18–40 | 1232 (38.24) |
| 41–60 | 1661 (51.55) | |
| 61–87 | 329 (10.21) | |
| Education | Up to secondary education | 1736 (53.88) |
| Higher education | 1486 (46.12) | |
| Employment status | Not working | 1292 (40.10) |
| Part-time working | 645 (20.02) | |
| Full-time working | 1285 (39.88) | |
| Years from diagnosis | 0–5 | 970 (30.11) |
| 6–15 | 1158 (35.94) | |
| 16–70 | 1094 (33.95) | |
| Organ involvement | ||
| Skin | No | 1307 (40.56) |
| Yes | 1915 (59.44) | |
| Heart | No | 2674 (82.99) |
| Yes | 548 (17.01) | |
| Bloodstream | No | 2343 (72.72) |
| Yes | 879 (27.28) | |
| Lungs | No | 2646 (82.12) |
| Yes | 576 (17.88) | |
| Central nervous system | No | 2683 (83.27) |
| Yes | 539 (16.73) | |
| Muscles | No | 1811 (56.21) |
| Yes | 1411 (43.79) | |
| Joints | No | 542 (16.82) |
| Yes | 2680 (83.18) | |
| Kidneys | No | 2247 (69.74) |
| Yes | 975 (30.26) | |
| Antiphospholipid syndrome | No | 2526 (78.40) |
| Yes | 696 (21.60) | |
| Disease under control | No | 908 (28.18) |
| Yes | 2314 (71.82) | |
| Quality of life | ||
| Functional autonomy | Low | 1750 (54.31) |
| High | 1472 (45.69) | |
| Pain and discomfort | Low | 2005 (62.23) |
| High | 1217 (37.77) | |
| Anxiety and depression | Low | 2145 (66.57) |
| High | 1077 (33.43) | |