Table 1

Patient and healthcare advisors’ characteristics (n=20)

A. Patient advisors’ characteristicsN=11
Age, years, median (range)42 (30–60)
Female, n (%)10 (91%)
Race
 Black n (%)6 (55%)
 White, n (%)4 (36%)
 Asian, n (%)1 (9%)
SLE disease duration <5 years5 (45%)
Severe SLE*6 (55%)
Area
 Madison, n (%)6 (55%)
 Milwaukee, n (%)5 (45%)
Social barriers reported, n (%)†5 (45%)
B. Healthcare advisors’ characteristicsN=9
Age, years, median (range)36 (30–48)
Female, n (%)7 (78%)
Race
 Black n (%)1 (11%)
 White, n (%)6 (67%)
 Hispanic, n (%)2 (22%)
Role in clinic, n (%)
 Physician2 (22%)
 Medical assistant2 (22%)
 Clinic director1 (11%)
 Registered nurse2 (22%)
 Pharmacist2 (22%)
Years of experience in lupus >5 years7 (78%)
  • *Severe SLE defined as central nervous system, renal or other major organ involvement.

  • †Social barriers or determinants of health in EHR defined as unstable housing, food insecurity, outstanding medical bills, lack of transportation, etc.