Patient and healthcare advisors’ characteristics (n=20)
| A. Patient advisors’ characteristics | N=11 |
| Age, years, median (range) | 42 (30–60) |
| Female, n (%) | 10 (91%) |
| Race | |
| Black n (%) | 6 (55%) |
| White, n (%) | 4 (36%) |
| Asian, n (%) | 1 (9%) |
| SLE disease duration <5 years | 5 (45%) |
| Severe SLE* | 6 (55%) |
| Area | |
| Madison, n (%) | 6 (55%) |
| Milwaukee, n (%) | 5 (45%) |
| Social barriers reported, n (%)† | 5 (45%) |
| B. Healthcare advisors’ characteristics | N=9 |
| Age, years, median (range) | 36 (30–48) |
| Female, n (%) | 7 (78%) |
| Race | |
| Black n (%) | 1 (11%) |
| White, n (%) | 6 (67%) |
| Hispanic, n (%) | 2 (22%) |
| Role in clinic, n (%) | |
| Physician | 2 (22%) |
| Medical assistant | 2 (22%) |
| Clinic director | 1 (11%) |
| Registered nurse | 2 (22%) |
| Pharmacist | 2 (22%) |
| Years of experience in lupus >5 years | 7 (78%) |
*Severe SLE defined as central nervous system, renal or other major organ involvement.
†Social barriers or determinants of health in EHR defined as unstable housing, food insecurity, outstanding medical bills, lack of transportation, etc.