Table 1

Participant characteristics

OverallIntermittentPersistent
n=42n=18n=24
Age, years (mean, SD)45 (14.5)38.7 (13.9)49.8 (13.4)
Disease duration, years (mean, SD)14.5 (9.5)13.2 (8.8)15.5 (10.1)
Female39 (93%)16 (89%)23 (96%)
Race/ethnicity
Non-Hispanic black22 (52%)12 (67%)10 (42%)
Non-Hispanic white15 (36%)4 (22%)11 (46%)
Hispanic2 (5%)1 (6%)1 (4%)
Asian2 (5%)1 (6%)1 (4%)
Two or more races1 (2%)0 (0%)1 (4%)
College education22 (52%)10 (56%)12 (50%)
Medicare/Medicaid/no insurance20 (48%)6 (33%)14 (58%)
Married or living with partner21 (50%)8 (44%)13 (54%)
Number of individuals to count on for help or support (mean, SD)3.5 (1.9)3.4 (1.9)3.6 (2.0)
≥2 individuals35 (83%)15 (83%)20 (83%)