Table 1

Characteristics of patients in the SLE cohort (N=478)

Characteristicsn%
Demographics
Age (range=15–46), mean±SD years33.6±8.0
Race
 (Missing)265.4
 African American24851.9
 Caucasian11824.7
 Other6613.8
 Asian153.1
 American Indian/Native Alaskan51.0
Positivity of antiphospholipid antibodies (missing=91)15231.8
Counselling
Specialty of contraception counselling (not mutually exclusive)
Rheumatology27256.9
OB/GYN15532.4
Nephrology9720.3
Family medicine4810.0
Internal medicine (IM)459.4
Other408.4
Haematology224.6
Pharmacy153.1
Number of counselling specialties
 010321.5
 1 (most common groups (n=): rheumatology (92), OB/GYN (36), family (12), nephrology (11))16534.5
 2 (rheumatology+OB/GYN (45), rheumatology+nephrology (24))12726.6
 3 (rheumatology+OB/GYN+nephrology (12), rheumatology+nephrology+IM (9))6012.6
 4 (rheumatology+OB/GYN+nephrology+other (6))214.4
 5 (rheumatology+OB/GYN+nephrology+IM+other)10.2
 6 (rheumatology+OB/GYN+nephrology+other+haematology+pharmacy)10.2
At least 1 counselling specialty37578.5
At least 2 counselling specialties21043.9
At least 3 counselling specialties8317.4
Immunosuppression
Immunosuppression use (not mutually exclusive)
Hydroxychloroquine (HCQ)41286.2
Mycophenolate mofetil/mycophenolic acid (MMF/MPA)14329.9
Monoclonal antibody (mAb) (missing=1)7315.3
Methotrexate (MTX)336.9
Cyclophosphamide (CYC) (missing=1)102.1
Teratogenic (MMF/MPA, MTX, CYC)18338.3
Number of immunosuppressive medications
 (Missing)20.4
 0234.8
 1 (most common groups (n=): HCQ (230), MMF/MPA (18), mAb (11))26655.6
 2 (HCQ+MMF/MPA (102), HCQ+mAb (30), HCQ+MTX (18))15933.3
 3 (HCQ+MMF/MPA+mAb (15), HCQ+mAb+MTX (9))285.9
At least 1 immunosuppressive medication (missing=2)45394.8
At least 2 immunosuppressive medications (missing=2)18739.1
Contraception
Type of contraception (n=)
 None documented (106) or documented as not using (38)14430.1
 Levonorgestrel IUD (65), Nexplanon (27), copper IUD (10), patch (1) or ring (1)10421.8
 Tubal ligation/salpingectomy (58) or partner vasectomy (6)/orchiectomy (1)6513.6
 Depo-Provera injections (32) or progestin-only OCPs (16)4810.0
 Condoms357.3
 Abstinence326.7
 Combination OCPs306.3
 Currently pregnant (8), menopausal (7) or same sex partner (5)204.2
  • mAb: includes rituximab and belimumab.

  • IUD, intrauterine device; OB/GYN, obstetrics/gynaecology; OCPs, oral contraceptives.