Patient and healthcare advisors’ characteristics (n=20)
| A. Patient advisors’ characteristics | N=11 | |
| Age, years, median (range) | 42 (30–60) | |
| Female, n (%) | 10 (91%) | |
| Race | Black n (%) | 6 (55%) |
| White, n (%) | 4 (36%) | |
| Asian, n (%) | 1 (9%) | |
| SLE disease duration <5 years | 5 (45%) | |
| Severe SLE* | 6 (55%) | |
| Area | Madison, n (%) | 6 (55%) |
| Milwaukee, n (%) | 5 (45%) | |
| Social barriers reported, n (%)† | 5 (45%) | |
| Low health literacy, n (%) | 3 (27%) | |
| B. Healthcare advisors’ characteristics | N=9 | |
| Age, years, median (range) | 36 (30–48) | |
| Female, n (%) | 7 (78%) | |
| Race | Black n (%) | 1 (11%) |
| White, n (%) | 6 (67%) | |
| Hispanic, n (%) | 2 (22%) | |
| Role in clinic, n (%) | Physician | 2 (22%) |
| Medical assistant | 2 (22%) | |
| Clinic director | 1 (11%) | |
| Registered nurse | 2 (22%) | |
| Pharmacist | 2 (22%) | |
| Years of experience in lupus care >5 years | 7 (78%) | |
*Severe SLE defined as CNS, renal or other major organ involvement.
†Social barriers or determinants of health in EHR defined as unstable housing, food insecurity, outstanding medical bills, lack of transportation, etc.
CNS, central nervous system; EHR, electronic health record.