Baseline demographic, disease related and work characteristics
| Total (n=220) | Employed (n=114) | Unemployed (n=106) | |
|---|---|---|---|
| Demographic characteristics | |||
| Female | 199 (90.5%) | 104 (91.2%) | 95 (89.6%) |
| Caucasian ethnicity | 153 (69.5%) | 80 (70.2%) | 73 (68.9%) |
| Age (years), mean (SD) | 41 (12.5) | 36 (8.9) | 47 (13.6) |
| Disease related characteristics | |||
| Disease duration in years | 5 [1–11] | 4 [1–8] | 7 [2–12] |
| SDI | 1 [0–2] | 0 [0–1] | 1 [0–3] |
| SLEDAI-2K score1 | 4 [2–6] | 4 [2–6] | 2 [2–6] |
| Work characteristics | |||
| Having work in the past2 | 98 (94.2%) | ||
| Having work at diagnosis3 | 48 (47.1%) | ||
| Reported reason to stop working4
• SLE-related symptoms • Retirement • Employment contract not extended • Other | 58 (62.8%) 4 (4.3%) 4 (4.3%) 27 (28.7%) | ||
| Having evening and night shifts5 | 24 (21.6%) | ||
| Having irregular working hours6 | 27 (24.1%) | ||
| Job Content Questionnaire • Skill discretion7 • Decision authority8 • Decision latitude9 • Psychological job demands10 • Supervisor support11 • Coworker support12 | 36.6 (6.0) 34.2 (8.6) 71.6 (12.6) 32.6 (5.1) 11.4 (2.5) 13.3 (1.8) | ||
| Working during follow-up13
• 1–4 years • ≥5 years | 52 (45.6%) 62 (54.4%) | 15 (88.2%) 2 (11.8%) | |
Legend: Baseline demographic, disease related and work characteristics of the total population (n=220), employed patients (n=114) and unemployed patients (n=106). Data are presented as n (%), mean (SD) or median [interquartile range]
1. Employed: n=114, Unemployed: n=105. 2. Unemployed: n=104. 3. Unemployed: n=102. 4. Unemployed: n=93. 5. Employed: n=111. 6. Employed: n=112. 7. Employed: n=25. 8. Employed: n=26. 9. Employed: n=25. 10. Employed: n=25. 11. Employed: n=22. 12. Employed: n=24. 13. Employed: n=114, Unemployed: n=17.
SDI = Systemic Lupus International Collaborative Clinics/American College of Rheumatology Damage Index; SLEDAI = Systemic Lupus Erythematosus Disease Activity Index 2000