Characteristics of the cohort
| N° of patients | 59 |
|---|---|
| Female | 52 (88.1%) |
| Age at study entry1[years ] | 46 (33–56) |
| Disease duration at study entry1[years ] | 12 (7–20) |
| Ethnicity: Caucasian/Asian/African-American | 55 (93.2%)/3 (5.1%)/1 (1.7%) |
| Cutaneous subgroup: chronic (CCLE)/subacute (SCLE )/acute (ACLE) | 28 (47.4%)/9 (15.3%)/22 (37.3%) |
| Ongoing organ involvement * | |
| Mucocutaneous | 99/109 (90.8%) |
| Haematological | 11/109 (10.1%) |
| Renal | 4/109 (3.7%) |
| Articular | 12/109 (11.0%) |
| Serositis | 0 |
| Neuropsychiatric | 0 |
| SLEDAI-2K1 * | 4 (2–6) |
| SLICC-DI1 * | 0 (0–1) |
| CLASI activity1 * | 5 (2–8) |
| CLASI damage1 * | 2 (0–8) |
| LIT1 * | 22.5 (12.5–47.5) |
| SLAQ1 * | 16 (11–26) |
| FACIT-F1 * | 38 (28–43) |
| HADS anxiety1 * | 6 (4–9) |
| HADS depression1 * | 7 (4–10) |
| Skindex-16 symptoms1 * | 37.5 (12.5–79.0) |
| Skindex-16 emotions1 * | 55.7 (21.4–90.5) |
| Skindex-16 functioning1 * | 31.7 (6.7–79.2) |
1 Median (IQR) * data on 109 assessments